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Anyone taking rivaroxaban yet? I've been referred to the consultant and it looks like I may go on to this drug seen as people like us are now covered with it! My INR is totally uncontrolled and I currently take sinthrome, ATM I'm taking 7.5 which I believe is a high dose. Would love to hear if anyone is on this wonder drug? I have to admit not having an INR taken weekly is a very nice idea :)

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Not really, other than Warfarin interacts with a couple of other medications that I'm on and the last time I took Warfarin it took 8 months to stabilise my INR. I just had a DVT in my arm which is the first spontaneous clot I've had (I had a PE in 1999 after a c-section) so they wanted to put me on something. Apparently this one is now approved by NHS / NICE so they were quite willing to put me on it :)

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Not especially. It has a short half life and taken twice a day. Doc said if you're in a situation that you're going to bleed to death it won't make a jot of difference.

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Wishing you good luck!

The haematologist was quite positive about it. Said it interacted with so much less than Warfarin (and I'm on a bucket load of other medications), and didn't require the constant INR tests. I asked about reversing it and she said look, if you're in an accident that you're losing blood at that rate this won't lose or buy you any time. It's got a short half life so there are things they can do to make sure you don't bleed out if you're being operated on, etc. I felt quite reassured.

I have to add at this point that I'm just repeating what I'm told and that I have not googled it. I have tendencies to google things to death and become a Google GP about subjects so I'm just trying to roll with it :)

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You've put my mind to rest thank you. A few years ago I went to see a consultant at the RVI in Newcastle, she was going to write a case for me to go on it then to NICE as warfarin was making my hair fall out. The side effects slowly stopped so I wasn't changed. Sinthome is like warfarin and very toxic. I was at that point taking 16-18 mg warfarin, ATM I'm taking 8mg of sinthome which is the same as about 16-18mg warfarin. My dose changes every week and my INR is never stable going from 1-3 - 4.5 in a week. If I miss a does it drops radically. This drug may be the answer to controlling my INR. I also find it a pain to go to hospital once or twice a week as my GP won't take over my drug as it cost to much which is a pain. Fingers crossed hopefully my next message will be about me swapping drugs. I've discussed this with my GP who has referred me to my consultant when I found out guild lines had changed. It's so important to keep each other informed who knows what new drug could help, improve or even save your life! X

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Since this post I've had a baby. Another boy who was born healthy at 37 weeks weighting 6lb 10oz, I breast fed for a while so only started rivaroxaban last week. I feel amazing, I must have been so worn down by warfarin then sinthrome and not realised. I've been on them or pregnant for 5 years, I did have a small break at one point. I was on a high dose though(between 14-20mg). I had to be under staff at the hospital because I was uncontrolled going once or twice a week. I'm a morning person again and can stay up late, my skins completely clear and nice again and my hair isn't falling out! No more weekly hospital trips for me either and my GP is now happy to take over my care. I'm very happy on this non toxic drug

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On 22 June 2014 at 3:21 PM, ElizabethLouise said:

Anyone taking rivaroxaban yet? I've been referred to the consultant and it looks like I may go on to this drug seen as people like us are now covered with it! My INR is totally uncontrolled and I currently take sinthrome, ATM I'm taking 7.5 which I believe is a high dose. Would love to hear if anyone is on this wonder drug? I have to admit not having an INR taken weekly is a very nice idea :)

I have recently been transferred to Rivaroxaban and have experienced the most horrendous hair loss.  I have lost 70% of my hair's density and am now considering a wig.  My hair also thinned on warfarin, but not to the same extent.  Has anyone else experienced hair loss?  Anna

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