Our first survey (PSD1) was published on 14th May 2002.
Protein S Deficiency Research Survey (PSD1)
- www.proteinsdeficiency.com/pdf/psd1report.pdf - Acrobat PDF
- www.proteinsdeficiency.com/psd1report.php - Web Page
Summary: Our survey asked people with Protein S Deficiency to give basic details of their health, lifestyle and experiences dealing with this rare blood disorder which is a recognised risk factor for venous thrombosis. The response indicates a strong interest from people affected by Protein S Deficiency to participate in further research and an opportunity for medical professionals to conduct follow up studies using a list of email contacts managed by www.proteinsdeficiency.com.
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