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About PrisonBull
- Birthday 04/29/1969
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I use the Sigvaris open-toed knee-highs. I prefer the black ones. I occasionally go without stockings when I am doing something active while wearing shorts.
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Just the tonic for bride-to-be
PrisonBull replied to James's topic in Protein S Deficiency - Lifestyle
Great story! As a side note, I have found that my family get colds/flu and I don't. Weird. -
Trying to find out if this drug is covered by my health plan. My doctor recommended it as I am very delinquent on my blood sampling. (I know, I know but 10mg a day w/o variance for 22 years will get anyone complacent)
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So now the pharmacy vampires are coming to harvest us?
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Veinous stasis and ulceration
PrisonBull replied to sober.biker's topic in Protein S Deficiency - Lifestyle
I agree with orangefoot. I can go for several days without wearing the stockings but my legs feel so much better when I wear them. -
I've been on warfarin (10mg) since 1989 and I only get headaches from dehydration.
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I was hired with their knowledge of my anti-coagulant usage. I hide my name as inmates might use this information. A popular misconception is that persons with PSD are on 'blood thinners'. As we know, our blood is just as thick/thin as everyone else's - we just clot faster. My only hang ups are with surgery or obtaining life insurance. Luckily I purchased life insurance (monthly payments) when I was 19, a year prior to being diagnosed. I would recommend everyone who has PSD to get their relatives to buy life insurance prior to being screened.
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I know you are looking for someone in the UK, but if you want a Canadian perspective, I am your guy. * 41 (name withheld due to employment as a correctional officer) * Vancouver, Canada * Blood specialist visit after initial DVT * 1990 - PE mis-diagnosed followed several months by a complete DVT of full right leg, venous return requiring intensive care for 5 weeks * Daily management as below but nothing special. Wary of being hit in the nose. * 10mg warfarin sodium daily, compression stockings, very moderate consumption of alcohol, irregular INR checks (dosage hasn't changed in 21 yrs) * Almost always asked by practitioners if I have a artificial heart when getting my INR checked
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Work patterns and INR stability
PrisonBull replied to Barbara62's topic in Protein S Deficiency - Lifestyle
I have been working graveyard and dayshifts for 21 years with zero effect on my INR. -
Forum Upgrade - Post Here If We Emailed You
PrisonBull replied to James's topic in Protein S Deficiency - Lifestyle
Still ticking here! -
I never have them.
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Veinous stasis and ulceration
PrisonBull replied to sober.biker's topic in Protein S Deficiency - Lifestyle
Lots of experience with ulceration (ankle to hip right leg and left knee). My ulcers came from not wearing stockings. I totally agree on upping your compression level. Try swimming as an exercise if the ulcer isn't too bad. Need to get oxygen to the tissues. -
My Dr will not prescribe heparin for long haul flight
PrisonBull replied to henry's topic in Protein S Deficiency - Lifestyle
You don't need an anti-coagulant if you are within normal ranges. One of the reasons for concern is the normally cramped conditions of a long-haul flight. You probably have nothing to fear. My personal emergence of PSD only occurred after receiving a slap shot to my ankle (only in Canada, eh?). I've been on many a plane prior + post diagnosis. I do/take nothing different than my normal meds and compression stockings when flying. My 'man-hose' as my wife so eloquently puts it. Just get up and walk around a bit during the flight. Normal advice for any traveler. Sorry James! -
My Dr will not prescribe heparin for long haul flight
PrisonBull replied to henry's topic in Protein S Deficiency - Lifestyle
You should be checked at least once a month. Your INR should be kept within normal ranges. Make no mistake - this is can be a very serious problem if left untreated. -
My Dr will not prescribe heparin for long haul flight
PrisonBull replied to henry's topic in Protein S Deficiency - Lifestyle
Welcome to the forums! If you haven't clotted before you should be 99.99999% fine. There is nothing wrong with having one aspirin a day if all it does is give you peace of mind...or a glass of beer... Do get the socks as that will relieve stress on your legs. Do get up and walk around during the flight. I flew around the world before I was diagnosed and I didn't get up much. I've never had any altitude problems. Worst case scenario: Let a stewardess know that you may be prone to clotting just in case anything happens.