I am so glad to have re-found this site. I read this message and was hopeful. 6mths after a nasty Renal Vein DVT that has now been chronic for the last 16 years I got very sick. About 2 years later I was diagnosed with CFS/Fibro...I know this isn't the lupus, but I"m not sure any of the tests for this have been done. I'm going to have my rhum. doctor look through his records and see if this has been checked out. I know it may sound bad to say, but I really hope it is the Huges Syndrome...there seems to be at least a somewhat logical way to manage it. CFS/Fibro has my barely getting by. So, thanks of the hope!