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    Spending time with my family and friends. Music,gardening,beaches.

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  1. James, I Thank you for your reply I have explained to the school in detail that the children are normal young children. And the chances of them having a clotting episode are very very slim, and again, they are far too young to be tested for PSD, and they may, or may not have it. My outlook on it is that they will be treated as though they haven't got it, until proved otherwise. My children are 6, 3 and 15 months. Far too young to be told of the PSD situation, and the problems that may possibly come with it. I wouldn't even contemplate telling them until they reach an age where i would see it fit for them to know. An age when they would understand all aspects involved. My eldest has a severe case of Tallipes, has endured many operations, casts, splints etc. But hes a normal little boy, and he knows it. We don't make a big issue of his foot and leg. And neither does he.If he has any questions regarding it, then they are answered in a manner that he can understand, and in an honest approach. I'm not going to set limitations on him, and make him think that hes not quite " Normal", because he is. I understand what you are saying, once again, I Thank You.
  2. My children are enrolled at school, and as a result of me detailing some of my medical history that may be relevant to the children ( PSD and Spina Bifida ), I have been asked to fill out more forms. And to be honest with you, I haven't got a clue as to what I should write. I have stated in the previous forms that there is a chance that the children are PSD, but they are too young to be tested. And that the chances are them having a clotting episode are really quite small. But, because there is a chance, I have been asked to fill out more forms. I will write a few of the questions, and I hope that some of you will be able to give me some feedback. *Prevention Procedure.... *Symptoms Indicating Treatment is Required... *Action to be taken... *Medication to be Administered... *Dosage... *Frequency... *Further relevant information... My children are still very young, and this is not something that I really thought I would have to give a lot of thought for quite some years yet. They will all obviously be tested when they reach an age that is suitable. In some ways, I believe that it is more important for my Daughter to be tested than my sons. Birth control issues, pregnancy issues etc. I am not going to wrap my children up in cotton wool. They are normal young healthy children who will run, jump, climb, and have many falls along the way !!! The PSD is not an issue for them, and nor should it be But I guess the reality of it is that, it could be a possibility of it affecting them one day. And whilst they attend school, and are out of my care, the school has a responsibility for them, and a duty of care. Whilst I understand the need for the Medical Forms to be filled out, I just don't know what to say
  3. Stephanie, I have no words that could possibly convey my sympathies for you, and your husband. I can't imagine what you are going through at this moment in time. I'm just so very sorry for you both. Take care of one another.
  4. Hello there Please can you explain what you meant about the Lovenox. " I have tried low dose Lovenox however not successful at 9 weeks." Do you mean you miscarried at 9 weeks, or developed problems from the Lovenox itself ? Would be interested to hear. I guess you may have read some of the posts in this site. If you haven't already done so, it would be well worth your time. You will see all sorts of stories, and experiences. Many sad, but many happy. I can't speak for some of the other ladies here, but from reading their posts, and my own experiences I get the general feeling that there have been more sunny days rather than rainy ones. Some of the ladies have had what i would say to be an unfair deal, but they have coped and showed strength beyond belief. They have also increased their knowledge on their Health matters, and that is always a positive thing to do. I have had numerous miscarriages, and three viable pregnancies which have resulted in three beautiful children. For the first pregnancy, I wasn't Anti Coagulted, but for the other two, I was. Had a few dramas along the way, but we got there in the end. Sometimes we have to go through the bad to get to the good. And when that happens, it makes one realise how lucky they are. Good Luck
  5. Katy, From my own experience, and the knowledge I have gained, the chances are very slim. You would have to be unlucky to say the least. I have had 3 pregnancies that resulted in 3 beautiful children. For my first pregnancy I wasn't on any Anti Coags. For the second, and third one, I was. The second pregnancy, I had no problems with any form of clots. For the third one, it was literally a nightmare. PSD aside, I had other numerous medical problems, and I had a tough time with them. But, I also had huge problems on the " Blood side " of things. I had the SCH early on. Then at 23 wks ( ? ) I had the Placenta Abruption diagnosed. The clot was a good size indeed. That continued to be problematic until he was born at 37 wks via C Section. After that, I had a massive Haematoma on the C Section scar. A week later, I collapsed through an agonising Haemorhage at the shops.... Just Beaut Even after the D & C, I continued to bleed for approx 3 months. It looked like I was going to require a Hysterectomy for a while. But, things settled down, it just took a while. For me, it was just a bad run. Some problems were expected, some were totally unforseen. And, I guess we have to deal with things when and if they arise. I did everything that I knew was right, and followed all of the medical advice that was given to me. But, my end result is a little Saxon James And mate, it was all worth it
  6. A clot on, or around the Placenta, and Cord can slow down the growth rate of the baby. It can also prevent it from getting nourishment, and slow down the rate of blood flow. All of the above can be a medical emergency. Depending on the severity of the above conditions, Drs, and Obs have to decide if the baby is better off in Utero, or delivered through a C Section, and put in a Neo Natal Intensive Care Unit. Where the Dr, Nurses literally fight to keep these little babies alive. Obviously if the baby is from 34 wks onward, the chances are excellent. The possibility of long term damage is minimal indeed. If the Drs suspect anything untoward on the Placenta, and Cord, it is their duty of care to the Mother and baby, to check on a regular basis via Ultrasound.
  7. Apple, You are right. You cannot get a true reading whilst pregnant as pregnancy lowers the protein levels. A woman can get tested by all means, but, the results would by no means be accurate. In a sense you could get a false positive. I was also told that you have to wait at least 6 weeks to be tested until after the pregnancy. Some Drs will even wait a bit longer than the 6 week period. Or you can get tested at the 6 week period, then possibly re tested again a few weeks after that.
  8. Katy, It sounds like your pregnancy is running normally, and smoothly. You are a very lucky, and fortunate lady. Your baby is healthy, and growing well. Your baby is lucky to have you as a Mother. You obviously look after yourself very well, and have high regard for your health. For that, I respect you. Our children are so precious, and as a parent we want nothing more than for everything to be right for them. At times, I am sure we are all over protective, but hey, we're allowed to be Sometimes when things don't go always to plan, and we have had a previous bad experience, it can make this experience somewhat daunting. It can be easy to fall into the trap of being so consumed by the prior negative experience, that we make unreasonable demands, want extra pre cautions, have unrealistic expectations etc. Lets face it, we're only Human afterall. Please don't think that I am critiscising you in any way, as I certainly am not. To a certain extent I can relate to how you feel. Hey, you have every right to want the very best for yourself, and your little Bubba. As parents do. And we should never have to justify that, or be made to feel as though we should appologise for that. All I'm trying to say is that it sounds you are good hands. The Dr you saw may have been rude, but hey, aren't the majority of them rude It doesn't always hurt to see a different Dr. Their opinions may differ greatly from your usual Dr. That's just the way of the world. And it doesn't mean that that's a bad thing. Sometimes, a different opinion can be beneficial. I will give you an example. ( It is totally unrelated to your topic, and this site, so I appologise for that.) I suffer chronic pain. Have Spina Bifida, and many changes secondary to that. Have had 3 major back ops. I saw a Neurosurgeon a few months ago. His prognosis that all by back problems were degenerative, and obviously in time, and age, it would all get worse. To expect to be in a wheelchair by the time I am 40. Go home, and deal with it. Surgery is no longer an option. Deal with the pain, and just take the pain medications. On Wednesday, I saw a different Neurosurgeon. Same prognosis Re Degeneration. But, a Spinal Fusion would stop some of my pain. I guess one has to have an open mind with regards to everything in life. We can't afford to let our negative experiences dull us, and hold us back. We have to live the moment that we're in now. A week later, annoying yeah, but in the big picture, it's nothing
  9. ALL THE VERY BEST. I am sure all will be fine for you. For myself, i found it easier to write down my questions rather than trying to remember them when I see specialists. Just a little hint Take Care.
  10. Katie, You are so right Re the guilt. Guilt is such an useless emotion in this sort of situation. Lynda, you are doing EVERYTHING in your power to ensure that you, and your baby have the best help in your current situation. Obviously an error has occured through no fault of your own. You have just followed the advice, and self medicated the prescribed dose. You are very fortunate indeed, but, I agree with you, and would certainly make a complaint and take matters further. This is not a small error by any means . All the Very Best.
  11. Hi there, I have had 3 children, and have suffered numerous miscarriages along the way. During my last 2 pregnancies i was on Clexane, and this was discontinued 6 wks post op.All pregnancies resulted in C Sctions. My last pregnancy was somewhat problematic. It was an uphill battle from day one, with many complications. Early on in the pregnancy i suffered a SCH. A couple of scans later, I was given the all clear, and told that whilst it was possible that it could return, it was unlikely. The odds were in my favour anyway I had a massive bleed associated with painful stomach cramps at 23 - 24 wks, if memory serves me correct. ( It will be in one of my previous posts somewhere.) An ultrasound detected that the Placenta had partially separated. We spoke with paediatricians,surgeons and Obs at the hospital. We were told that the separation could remain the same, and not get worse, or,it could separate even more, or totally. The odds of my son surviving if the latter occured was 10 %. We pretty much had to wait it out, and see what the outcome was going to be. It was just a total emotional rollercoaster. The level of anxiety was just mind blowing. As each week went on, my sons odds increased. Scans showed that the separation hadn't got any worse. He was growing above normal limits, the oxygen and blood flow were within normal limits, and the fluid around the sac was a healthy volume. The massive blood clot that was attached to the side of the Placenta slowly, but surely started to decrease. On June 13 th my son was born. Friday 13 th, unlucky for some. A true miracle for me. He was born at 37 wks weighing 7 lbs 3 oz. A strong healthy boy. He's now 9 months old, and a treasure People say things happen for a reason, and I am a firm believer in that. Whether it may be a lesson to learn, or to strengthen ones character, I don't know. I guess it's not always obvious at the time, and may not be for some time later. And sometimes things just happen, they are not always right, and they are not always fair.But they happen, and we have to accept that is such, and deal with them in the best way we know how. I wanted to share my story with you, just to let you know, that sometimes, things do go right. Against all odds, it still can be right. I wish you all the very best
  12. Hi Stephanie, I have been through what you are going through now. I also had a SCH in my Uterus within the first 3 months of pregnancy. I was told that it was nothing to worry about. It was no harm to me, or my son. And, that was true. At the time, I was told that the most likely cause was because of the Clexane. But, given the fact that the bleed was harmless, and my history, i was advised to stay on the Clexane. At the next scan a few weeks later, the SCH had decreased in size, and was only just visible. I had an appointment with the High Risk Ob, and his feelings was that the Clexane certainly contributed towards the bleed. A quick scan showed that the SCH was no longer there. Again the advice was to be aware, but to remain on the Clexane. The Ob did not expect there to be any other worries regarding the SCH. He said that whilst it was possible, I would have been unlucky to bleed again. Hope this helps in some way
  13. I'm not a "Lifer" either. Like you, just for the high risk situations. I suffered a PE in 2000 after my last back op. All of my pregnancies were delivered via C Section. All planned as a result of my back problems. I stopped using the Clexane 6 weeks post op. I will be travelling from Aus to the UK within the next 6 months, so it'll be a return to the Clexane, and those sexy stockings Will you wear them after your Section ? I had to wear them for a few months throughout my last pregnancy because I was hospitalised on numerous occassions, and on strict bed rest. I was finally able to get rid of them 4 weeks post op.
  14. LOL... It'll all be worth it in the end. With regards to your injections whats the plan with that Re the birth, and after ? Are you on Anti Coags for life, or just high risk situations ? If you have already mentioned that in a previous post, please forgive my ignorance
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