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Everything posted by Yogi

  1. James, I Thank you for your reply I have explained to the school in detail that the children are normal young children. And the chances of them having a clotting episode are very very slim, and again, they are far too young to be tested for PSD, and they may, or may not have it. My outlook on it is that they will be treated as though they haven't got it, until proved otherwise. My children are 6, 3 and 15 months. Far too young to be told of the PSD situation, and the problems that may possibly come with it. I wouldn't even contemplate telling them until they reach an age where i would see it fit for them to know. An age when they would understand all aspects involved. My eldest has a severe case of Tallipes, has endured many operations, casts, splints etc. But hes a normal little boy, and he knows it. We don't make a big issue of his foot and leg. And neither does he.If he has any questions regarding it, then they are answered in a manner that he can understand, and in an honest approach. I'm not going to set limitations on him, and make him think that hes not quite " Normal", because he is. I understand what you are saying, once again, I Thank You.
  2. My children are enrolled at school, and as a result of me detailing some of my medical history that may be relevant to the children ( PSD and Spina Bifida ), I have been asked to fill out more forms. And to be honest with you, I haven't got a clue as to what I should write. I have stated in the previous forms that there is a chance that the children are PSD, but they are too young to be tested. And that the chances are them having a clotting episode are really quite small. But, because there is a chance, I have been asked to fill out more forms. I will write a few of the questions, and I hope that some of you will be able to give me some feedback. *Prevention Procedure.... *Symptoms Indicating Treatment is Required... *Action to be taken... *Medication to be Administered... *Dosage... *Frequency... *Further relevant information... My children are still very young, and this is not something that I really thought I would have to give a lot of thought for quite some years yet. They will all obviously be tested when they reach an age that is suitable. In some ways, I believe that it is more important for my Daughter to be tested than my sons. Birth control issues, pregnancy issues etc. I am not going to wrap my children up in cotton wool. They are normal young healthy children who will run, jump, climb, and have many falls along the way !!! The PSD is not an issue for them, and nor should it be But I guess the reality of it is that, it could be a possibility of it affecting them one day. And whilst they attend school, and are out of my care, the school has a responsibility for them, and a duty of care. Whilst I understand the need for the Medical Forms to be filled out, I just don't know what to say
  3. Stephanie, I have no words that could possibly convey my sympathies for you, and your husband. I can't imagine what you are going through at this moment in time. I'm just so very sorry for you both. Take care of one another.
  4. Hello there Please can you explain what you meant about the Lovenox. " I have tried low dose Lovenox however not successful at 9 weeks." Do you mean you miscarried at 9 weeks, or developed problems from the Lovenox itself ? Would be interested to hear. I guess you may have read some of the posts in this site. If you haven't already done so, it would be well worth your time. You will see all sorts of stories, and experiences. Many sad, but many happy. I can't speak for some of the other ladies here, but from reading their posts, and my own experiences I get the general feeling that there have been more sunny days rather than rainy ones. Some of the ladies have had what i would say to be an unfair deal, but they have coped and showed strength beyond belief. They have also increased their knowledge on their Health matters, and that is always a positive thing to do. I have had numerous miscarriages, and three viable pregnancies which have resulted in three beautiful children. For the first pregnancy, I wasn't Anti Coagulted, but for the other two, I was. Had a few dramas along the way, but we got there in the end. Sometimes we have to go through the bad to get to the good. And when that happens, it makes one realise how lucky they are. Good Luck
  5. Katy, From my own experience, and the knowledge I have gained, the chances are very slim. You would have to be unlucky to say the least. I have had 3 pregnancies that resulted in 3 beautiful children. For my first pregnancy I wasn't on any Anti Coags. For the second, and third one, I was. The second pregnancy, I had no problems with any form of clots. For the third one, it was literally a nightmare. PSD aside, I had other numerous medical problems, and I had a tough time with them. But, I also had huge problems on the " Blood side " of things. I had the SCH early on. Then at 23 wks ( ? ) I had the Placenta Abruption diagnosed. The clot was a good size indeed. That continued to be problematic until he was born at 37 wks via C Section. After that, I had a massive Haematoma on the C Section scar. A week later, I collapsed through an agonising Haemorhage at the shops.... Just Beaut Even after the D & C, I continued to bleed for approx 3 months. It looked like I was going to require a Hysterectomy for a while. But, things settled down, it just took a while. For me, it was just a bad run. Some problems were expected, some were totally unforseen. And, I guess we have to deal with things when and if they arise. I did everything that I knew was right, and followed all of the medical advice that was given to me. But, my end result is a little Saxon James And mate, it was all worth it
  6. A clot on, or around the Placenta, and Cord can slow down the growth rate of the baby. It can also prevent it from getting nourishment, and slow down the rate of blood flow. All of the above can be a medical emergency. Depending on the severity of the above conditions, Drs, and Obs have to decide if the baby is better off in Utero, or delivered through a C Section, and put in a Neo Natal Intensive Care Unit. Where the Dr, Nurses literally fight to keep these little babies alive. Obviously if the baby is from 34 wks onward, the chances are excellent. The possibility of long term damage is minimal indeed. If the Drs suspect anything untoward on the Placenta, and Cord, it is their duty of care to the Mother and baby, to check on a regular basis via Ultrasound.
  7. Apple, You are right. You cannot get a true reading whilst pregnant as pregnancy lowers the protein levels. A woman can get tested by all means, but, the results would by no means be accurate. In a sense you could get a false positive. I was also told that you have to wait at least 6 weeks to be tested until after the pregnancy. Some Drs will even wait a bit longer than the 6 week period. Or you can get tested at the 6 week period, then possibly re tested again a few weeks after that.
  8. Katy, It sounds like your pregnancy is running normally, and smoothly. You are a very lucky, and fortunate lady. Your baby is healthy, and growing well. Your baby is lucky to have you as a Mother. You obviously look after yourself very well, and have high regard for your health. For that, I respect you. Our children are so precious, and as a parent we want nothing more than for everything to be right for them. At times, I am sure we are all over protective, but hey, we're allowed to be Sometimes when things don't go always to plan, and we have had a previous bad experience, it can make this experience somewhat daunting. It can be easy to fall into the trap of being so consumed by the prior negative experience, that we make unreasonable demands, want extra pre cautions, have unrealistic expectations etc. Lets face it, we're only Human afterall. Please don't think that I am critiscising you in any way, as I certainly am not. To a certain extent I can relate to how you feel. Hey, you have every right to want the very best for yourself, and your little Bubba. As parents do. And we should never have to justify that, or be made to feel as though we should appologise for that. All I'm trying to say is that it sounds you are good hands. The Dr you saw may have been rude, but hey, aren't the majority of them rude It doesn't always hurt to see a different Dr. Their opinions may differ greatly from your usual Dr. That's just the way of the world. And it doesn't mean that that's a bad thing. Sometimes, a different opinion can be beneficial. I will give you an example. ( It is totally unrelated to your topic, and this site, so I appologise for that.) I suffer chronic pain. Have Spina Bifida, and many changes secondary to that. Have had 3 major back ops. I saw a Neurosurgeon a few months ago. His prognosis that all by back problems were degenerative, and obviously in time, and age, it would all get worse. To expect to be in a wheelchair by the time I am 40. Go home, and deal with it. Surgery is no longer an option. Deal with the pain, and just take the pain medications. On Wednesday, I saw a different Neurosurgeon. Same prognosis Re Degeneration. But, a Spinal Fusion would stop some of my pain. I guess one has to have an open mind with regards to everything in life. We can't afford to let our negative experiences dull us, and hold us back. We have to live the moment that we're in now. A week later, annoying yeah, but in the big picture, it's nothing
  9. ALL THE VERY BEST. I am sure all will be fine for you. For myself, i found it easier to write down my questions rather than trying to remember them when I see specialists. Just a little hint Take Care.
  10. Katie, You are so right Re the guilt. Guilt is such an useless emotion in this sort of situation. Lynda, you are doing EVERYTHING in your power to ensure that you, and your baby have the best help in your current situation. Obviously an error has occured through no fault of your own. You have just followed the advice, and self medicated the prescribed dose. You are very fortunate indeed, but, I agree with you, and would certainly make a complaint and take matters further. This is not a small error by any means . All the Very Best.
  11. Hi there, I have had 3 children, and have suffered numerous miscarriages along the way. During my last 2 pregnancies i was on Clexane, and this was discontinued 6 wks post op.All pregnancies resulted in C Sctions. My last pregnancy was somewhat problematic. It was an uphill battle from day one, with many complications. Early on in the pregnancy i suffered a SCH. A couple of scans later, I was given the all clear, and told that whilst it was possible that it could return, it was unlikely. The odds were in my favour anyway I had a massive bleed associated with painful stomach cramps at 23 - 24 wks, if memory serves me correct. ( It will be in one of my previous posts somewhere.) An ultrasound detected that the Placenta had partially separated. We spoke with paediatricians,surgeons and Obs at the hospital. We were told that the separation could remain the same, and not get worse, or,it could separate even more, or totally. The odds of my son surviving if the latter occured was 10 %. We pretty much had to wait it out, and see what the outcome was going to be. It was just a total emotional rollercoaster. The level of anxiety was just mind blowing. As each week went on, my sons odds increased. Scans showed that the separation hadn't got any worse. He was growing above normal limits, the oxygen and blood flow were within normal limits, and the fluid around the sac was a healthy volume. The massive blood clot that was attached to the side of the Placenta slowly, but surely started to decrease. On June 13 th my son was born. Friday 13 th, unlucky for some. A true miracle for me. He was born at 37 wks weighing 7 lbs 3 oz. A strong healthy boy. He's now 9 months old, and a treasure People say things happen for a reason, and I am a firm believer in that. Whether it may be a lesson to learn, or to strengthen ones character, I don't know. I guess it's not always obvious at the time, and may not be for some time later. And sometimes things just happen, they are not always right, and they are not always fair.But they happen, and we have to accept that is such, and deal with them in the best way we know how. I wanted to share my story with you, just to let you know, that sometimes, things do go right. Against all odds, it still can be right. I wish you all the very best
  12. Hi Stephanie, I have been through what you are going through now. I also had a SCH in my Uterus within the first 3 months of pregnancy. I was told that it was nothing to worry about. It was no harm to me, or my son. And, that was true. At the time, I was told that the most likely cause was because of the Clexane. But, given the fact that the bleed was harmless, and my history, i was advised to stay on the Clexane. At the next scan a few weeks later, the SCH had decreased in size, and was only just visible. I had an appointment with the High Risk Ob, and his feelings was that the Clexane certainly contributed towards the bleed. A quick scan showed that the SCH was no longer there. Again the advice was to be aware, but to remain on the Clexane. The Ob did not expect there to be any other worries regarding the SCH. He said that whilst it was possible, I would have been unlucky to bleed again. Hope this helps in some way
  13. I'm not a "Lifer" either. Like you, just for the high risk situations. I suffered a PE in 2000 after my last back op. All of my pregnancies were delivered via C Section. All planned as a result of my back problems. I stopped using the Clexane 6 weeks post op. I will be travelling from Aus to the UK within the next 6 months, so it'll be a return to the Clexane, and those sexy stockings Will you wear them after your Section ? I had to wear them for a few months throughout my last pregnancy because I was hospitalised on numerous occassions, and on strict bed rest. I was finally able to get rid of them 4 weeks post op.
  14. LOL... It'll all be worth it in the end. With regards to your injections whats the plan with that Re the birth, and after ? Are you on Anti Coags for life, or just high risk situations ? If you have already mentioned that in a previous post, please forgive my ignorance
  15. LOL.... Most pregnant women complain that they are gaining too much weight !!! You are the exception to that, you lucky thing Seriously though, speaking from my own experiences, and from what I have read, most women don't start to gain weight just yet. With my eldest, I was sick the whole way through my pregnancy, I wasn't even able to keep water down. But, at around 5-6 months, I still started to gain weight. A little off your question here..... I have a question for you. Out of curiosity, why has your dosage been increased ?
  16. I found that the tummy was the best place to inject, I tried my thighs and upper arms but found that they stung a bit too much for my liking ! The tummy area didn't hurt as much, and I found the bruising was minimal.
  17. Chin up !!! I feel for you, have been there. BUT, you are going to have a very happy, healthy, gorgeous bundle of joy. And Bubs' Mum is going to be well and healthy too. Take Care of you
  18. Leo, I don't know if Folic Acid has any adverse effects. But I do know that pregnant women are strongly urged to take the supplements during the first 3 months of pregnancy. I have Spina Bifida, and there is also a family history of it. Because of those 2 factors, I had to take a 5 mg dose ( rather than the 0.5 mg dose ) 6 wks before TTC. I don't think my comments will shed any light for you, but I hope that some day you get the answers that you need.
  19. WOW Krisliz, You go girl Good on ya. Hope it all turns out well for you, as I'm sure it will. I agree with Katybops, you can't worry too much about Clexane, and the possible risks associated with it. They are rare. You would have to be one of the unlucky ones. So, the odds are going to be most certainly in your favour. I am interested to know how things went for you.
  20. Don't mean to throw a spanner into the works, BUT....... If you were to test a pregnant woman for clotting disorders, would you get an accurate test reading ? Would it be fair to say that you could get a false positive ?
  21. Katybops, I know that apart from the general bleeding risks, Anti Coags CAN cause problems with clots on / within the Placenta. A bleed in the Placenta CAN cause an Abruption, slight, or total. An Abruption can endanger both Mother and baby. I don't know what the statistics are. And i don't know the degree of the problems when things go wrong. It's just another risk. I would imagine that it would NOT be a common problem as many pregnant women are treated with Anti Coags for various reasons. You would have to be one of the unfortunate ones. I had these problems in my last pregnany, and had a partial Placenta Abruption at 23 wks. It was touch and go for some time. Probably one of the most horrifying experiences of my life. My son is now 7 months old. He is a big healthy boy, and thankfully didn't suffer any of the effects. He was lucky, and so am I to have him I was just unlucky, nothing more, nothing less. My 2 previous pregnancies went pretty much fine, no real problems with the blood side of things. All of the pregnancies were C Section, and again, they all went well. In a way, the meds are like cars. Driving them can be a risk, things can go wrong. But the majority of people rely on transport, and need them to get from A to B. Even though we know the risks ( Accidents, speed, hazards etc.) we still use them. Just because there is an element of risk involved, it doesn't mean we will have an accident. We just need to be as cautious as possible, and aware. In my previous post in this topic, I made a statement.... Transfusion City en route to possible Hysterectomy City..... It was a light hearted joke. I have since re read it, and I feel that it was probably a blaze comment. Flippant to say the least. If my comment had caused you great concern, and anxiety, I offer my sincere appologies. That also applies to anyone else that may have been offended.
  22. rockwell ! I also can't understand why you haven't been given the injections when you are TTC. The Warfarin can be harmful for the unborn baby, and have long term effects. A second opinion may be the way to go. When I was on Warfarin, my Dr couldn't stress enough to me of the dangers, implications,risks etc. if I were to fall pregnant. Best of Luck
  23. Krisliz, Thank you for your prompt reply It is confusing, and frustrating when we are told different things. It can make us feel uneasy, and something of a sitting duck I can understand why you have been advised this time around not to have the Clexane injections. You had a few complications after your last pregnancy/ Section. You will be having another C Section, a procedure with few risks, but risks all the same. Put a blood thinning agent into that.... Transfusion City en route to possible Hysterectomy City !!! And, you have been fortunate in the respect that the only clot you had was superficial, not a sinister DVT, PE. I agree with you when you say that with regular blood tests, and possibly more scans than the normal 2-3 you will be far more informed. I believe that it is important that you have a consult with a Haematologist. You have a blood disorder, and the blood side of things is their specialities. He / She may have different opinions to your Drs and Obs. Keep in touch, I am keen to see how things are going for you. Best of Luck.
  24. Krisliz I have had 3 viable pregnancies. For 2 of them I was treated with Anti Coagulants. I had no problems regarding my blood and clotting issues whilst receiving no treatment in my 1st pregnancy. I had no problems with the 2nd pregnancy whilst on Anti coags. I had many problems with my last pregnancy whilst on Anti coags. Some of those problems were related to the fact that I injected Clexane. I continued to have problems up until my son was 6-8 wks old, again the Clexane was a contributing factor. But, you never know what card you're going to get dealt. My 2 previous experiences were pretty much problem free, apart from the usual complaints that is There are risks associated with Anti coagulants, as there are risks associated with not using Anti coags when you have certain medical conditions. If i had my time again, and knowing what I know, would I still opt for the Anti coag treatment ? In a word, Yes. I think that we all have different experiences, issues, risk factors etc. and that is why we are all given different advice and opinions. Even though the stories that we share are similar, and the treatments are ones that we've had at some stage, we are all individuals, and should be treated on an individual basis. It is difficult when we are given conflicting advice, that's for sure. What does your Haematologist say ? What reasons have you been given as to why you should be treated after the birth, and not throughout your pregnancy ? Have you had any clots ? If you feel uneasy about anything that has been said to you, then you are more than entitled to a second opinion. I can understand your concern for yourself, and the baby. Your health and well being is vital.
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