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LoisLyndaGolden

Pradaxa - New PSD Medication

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Hello All, I am currently on a new medication to treat PSD calle Pradaxa. I would like to know if anyone else is on this medication and what their experiences have been with this new treatment. Also, I'd like to know if you have any advice. I would love to connect with others with PSD to share our experiences.

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Hello and welcome! Have you had a clot? Is that why you are taking Pradaxa?

I take Pradaxa to reduce the risk of having another clot. I have Protein S Deficiency and had a long ankle to groin clot in 2003.

There isn't any treatment for PSD and usually you will only be prescribed anticoagulants like coumadin, warfarin, Pradaxa, and Rivaroxaban when you have had a clot and it is likely that you may have another. The only trouble I have with Pradaxa is remembering to take it twice a day! I have an app on my phone to remind me and that helps.

This forum is anonymous but if you don't mind being known by your name and friends seeing your posts about PSD you can join our facebook group https://www.facebook.com/groups/2506274438/

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Thanks for your reply.  I also use my phone to remind me in the evening to take Pradaxa.  I take it every A M when I wake up.  My doctor recommended this med because you do not have to monitor Vit K intake.  I am 77 and had my first clot (of 4) in 2011.  My last one was this past May when my doctor switched me to Pradaxa.  I live in the San Francisco Bay area and wanted to see a specialist for PSD but none seem to be located here.  I read that N C had some .  Do you know of any?  I am worried about clots developing and traveling to the lungs where I had them before.  I have bad varicose veins in my left leg, wear medical support stockings, and try to stay physically active to keep the blood moving.  Would you please share any knowledge you may have or comments about treatments/techniques that have worked for you?  Thanks so much.  LLG

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Hi Lois

I had my first clot at age 30. Lots of people with PSD have clots in early adulthood so you've done well to get to your 70s before having one. That said, its a shock at any age and having to make accommodations in life is harder the older we get. 

There's a thread  here on the forum where people have posted where they do and which doctors they see. It's a bit old but specialists tends to stick around so have a look there and see if ether is anyone close to you.

Wearing compression is good and keeping moving is also good. In the beginning I kept my leg up as much as I could, mainly because it hurt if I didn't! . Any time I sat down I rested by foot on something to my foot was in line with my knee. I lifted the end of my bed so that my foot was higher than my hip when asleep and that way I started the day with a pain free and slim-ish leg. This will help your varicose veins as well as general swelling in your leg. It took years to reduce the swelling in my leg and now I still wear compression because I have what's called Post Thrombotic Syndrome- basically I still have pain if I stand for 5-10 minutes without compression. I can manage a shower then I really have to put my stocking on to go about the rest of my day.

As there's nothing we can do about the PSD, the anticoagulants are our shield and everything else is about reducing pain and swelling so that we don't feel limited. Elevation, compression and movement at the things to focus on and bearing weight on your leg to make the 'foot pump' vein in the sole of the foot do the work to push blood back up the leg.

I hope some of this helps. Although it can feel lonely and bewildering, you are not alone on this journey.

If you are struggling to put stockings on this is a good way to do it. (I think her stocking is loose so easier to get on though!)




 

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