Guest Shells Posted May 20, 2003 Report Share Posted May 20, 2003 I have VERY recently been diagnosed as being PSD although I have had no symptoms I was tested due to my family history. The Haemotologist knows I am on the pill and has not said anything to me about going off. Were any of you told to go off the pill after diagnosis? Link to comment Share on other sites More sharing options...
Yogi Posted May 22, 2003 Report Share Posted May 22, 2003 Hi Shells,I suffered a PE in 2000. I wasn't tested for PSD at the time, it was some time later. Once it was diagnosed, I was told that I was never to take the Pill again. Yet, I was told that I could take the Mini Pill. There are risks associated with it, but they are apparently very very low. Basically the choice was mine. And I opted against it. Link to comment Share on other sites More sharing options...
Zarin Posted May 22, 2003 Report Share Posted May 22, 2003 I agree with Yogi, safer off the pill Link to comment Share on other sites More sharing options...
Angela C Posted May 23, 2003 Report Share Posted May 23, 2003 hi, i have psd and have had a dvt due to being on the combined pill. i have been told i can never take it again. however, i have seen two different haematologists and they have both said that i can take the mini pill. its totally up to the individual to choose to take the pill or not, i have chosen to take the mini pill as i'm not ready to start a family yet and to me the risks of getting pregnant far outweighs the risks of being on the mini pill. but as i said, it's up to the individual. Link to comment Share on other sites More sharing options...
Tamy Posted May 23, 2003 Report Share Posted May 23, 2003 I was told that I should never take the pill again. But I can have the Miridian IUD, which I do have and it has been fine. Link to comment Share on other sites More sharing options...
Guest jenni Posted May 28, 2003 Report Share Posted May 28, 2003 Can someone explain what the mini pill is. Also what arethe risks that go along with it. Link to comment Share on other sites More sharing options...
Tamy Posted June 2, 2003 Report Share Posted June 2, 2003 Hello everyone.Just thought I would let you all know that we are trying to have baby #2. We saw the high risk OB on Friday and he has me on 60mg of Lovenox twice a day and we'll test in about a week to see where that level is. He doesn't think it will take as long for us to get pregnant as it did with my little boy. I'll keep you all up to date on how the pregnancy goes when if finally happens. I hope it will help with any questions you all have on PSD and pregnancy. I posted off and on with my little boy, it was helpful to me, helped me with the stress. (after 4 miscarriages I was real worried about him).Take care......... Link to comment Share on other sites More sharing options...
Guest Naomi Posted July 24, 2003 Report Share Posted July 24, 2003 I was just diagnosed today - Dr. told me never to take the pill or estrogen therapy. Link to comment Share on other sites More sharing options...
Guest faithsgal Posted October 15, 2003 Report Share Posted October 15, 2003 Hey there everyone. I was just diagnosed today with PSD and have kind of a similar problem with the pill. My first born, Faith, was diagnosed with a rare brain malformation called schizencecphaly which my new OB/GYN believes might have been caused by a stroke in utero. I am planning on filing a lawsuit which is why I had the blood test in the first place. Now, my sister told me that being that I am on the pill it might have contributed to the signs showing up. If anyone knows anything about what I might be going through and if you have any information about the pill causing a "positive" sign in the blood work, that would be great if you could let me know ASAP!! Thank you so much!! You all are very helpful on here!!Lots of love, Manda Link to comment Share on other sites More sharing options...
Zarin Posted October 15, 2003 Report Share Posted October 15, 2003 It is not advisable to be on the pill if you tested positive for PSD as it will increase the risk of blood clots. You need to find an alternative, perhaps an IUD. Link to comment Share on other sites More sharing options...
Guest faithsgal Posted October 17, 2003 Report Share Posted October 17, 2003 thank you for the information. i will look into getting something else done besides being on the pill. thank you!manda Link to comment Share on other sites More sharing options...
Guest valerie Posted October 17, 2003 Report Share Posted October 17, 2003 Hi everyone! Just thought I would add my two cents. I have psd and was taken off the pill for a few years. I get horrible cramps and that is why I take it. Anyways, after going off the pill my bad cramps came back. My doctors have me on a progesterone only pill and that one is said to be the safest for clotting problems. The reason I can be on it is because I am on lovenox every day forever so because of the blood thinners and the fact that it is a progesterone only pill (no estrogen!) I can take them. And, better yet, the progesterone pill has less side effects! Link to comment Share on other sites More sharing options...
orangefoot Posted October 17, 2003 Report Share Posted October 17, 2003 Hello helloI was diagnosed whilst taking the combined pill Femodene and stopped taking it straightaway.As far as I know the mini (progesterone only) pill is 'safer' to use than an oestrogen pill but it is still carries a risk. You also have to be very good at taking pills at exactly the samee time as any error can affect its efficacy!! My GP and my haematologist have recommended not using any form of hormonal contraception, so I have a simple IUD which I have had no problems with at all. (I'm still period free at the moment due to breastfeeding , but have never had a period while taking Warfarin, will it be the same or different?) Link to comment Share on other sites More sharing options...
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