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Suggest a Slogan for PSD Awareness


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Have you seen the Lance Armstrong Livestrong wristband? Over 40 million have been sold to help raise funds and generate awareness of his foundation...

The Lance Armstrong Foundation (LAF) believes that in your battle with cancer, knowledge is power and attitude is everything. Founded in 1997 by cancer survivor and cycling champion Lance Armstrong, the LAF provides the practical information and tools people living with cancer need to live strong. We serve our mission through four core program areas - Education, Advocacy, Public Health, Research

Bracelets and wristbands (aka Reminderbands) have now been created in a variety of colours to support many causes such as breast cancer awareness, anti-bullying, anti-racism, AIDS, and even Tsunami Relief, each carries its own slogan.

If you had to create a wristband for Protein S Deficiency what words would you use?

What colour do you think it should be?

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Guest Darleen

Ok... Just a thought!

Color: How about a darker red... ( Dark Cherry, Burgandy)

Saying : PSD...A blood disorder that can creep while you sleep

it can be silent, and can be a killer.( Clot can travel, and grow in size) ..... "Creeps"

most of the time clots will form from immobility...."Sleeping"

Some people do have warning signs, some do not

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Guest simpson724

I like the dark red idea! I think we need awareness.....I had a stroke at 31 (due to the PSD) and am SO fortunate to be alive. I have been sharing the signs of stroke awareness with others but PSD is so rare that it is often overlooked as a possible cause.

More than anything I hope we find a better answer than the warfarin. I'm so fed up w/ getting my PT/INR checked every couple of weeks!

Like these ideas and I'll be thinking of other slogans too. Do we have an official awareness organization or is this pretty much it for support and such? I'm in the USA and haven't found anything here.

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To the best of my knowledge our web site is the only one offering support to people with PSD. I remember reading somewhere that there are something like 400 specialist haemophilia centres in the US, but only 4 for thrombophilia. The difference is lobbying.

The best chances for raising awareness are on the back of the media coverage for Air Related DVT. There's quite a bit of media attention on that because it is an interesting story but a sidepiece on the causes of thrombophilia could easily include PSD.

We are fortunate that Protein Deficiency has already been made into a movie...

http://www.protein.org.uk/forum/index.php?showtopic=1051

I recently upgraded the design of our web site so that it has better foundations for growth. I am currently trying to get an online shop off the ground so that we can raise a bit of money and hopefully work towards setting up a charity. I'm amazed but drug companies are extremely slow to respond to requests to sell their products.

By the way, I really like the phrase "Don't Be A Clot" ... I'm almost settled on using it but think we need more options on the "keep informed" and "get it checked" calls to action. If you can think of another phrase please put it forward.

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It is truely unfortunate that so little is known about blood clots and the consequences of having one. We have heart specialists. A coronory thrombosis is a blood clot in the heart, and yet we call it a heart attack and get some one to specialise in treating it in isolation to the root cause. If we have a cerebral embolism it is called a stroke and we are marched off to a neurologist. I was just talking to someone yesterday, her mother had a pulmonory embolism. No one is looking for the root of her problem. I directed her to this website as I dont know of anywhere else she could go to equip herself with more information.

Cancer and AIDs are not the biggest killer, blood clots are.( there maybe a slogan in here somewhere).

The truth of the matter is, for the several clotting disorders known the ratio of unknown ones is mind boggling. Dorctors are unaware and therefore cover-up by wrapping everthing up in jargon. My latin is not very good, but coming as I do from a family of doctors, and being a qualified psychologist myself, they dont fool me!

I have asked my husband to come up with a few slogans. I will also contact other family members in the advertising business to help. For now, 'dont be a clot" seems to be the best.

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Guest simpson724

Crohn's and Colitis uses "Got Guts"

Could we go with....Got Clots? Or is that stepping on anyone's toes? We could put Got Clots? on one side and PSD on the other....I'm finding that just telling my story is making folks aware. So, I'm so glad you're working on the online store...I think I could sell a bracelet or tee shirt to everyone in my family! I think the website is great and if I can help with the store let me know (I have a marketing background and enjoy that kind of thing).

Thanks!

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I dont have a suggestion for a slogan as yet, but it is on a back burner and my husband is working on it as well. I do, however, have a suggestion for a ribbon. How about a ribbon that is Royal Blue and red? Blue to represent the veins and red to represent the arteries.

I dont know about anyone else, but I have had arterial blood clots as well as DVTs. I have not determined whether it is due to PSD or because of other clotting abnormalities. Bottom line is Blood clots remain the number one killer and we really need to enhance public awareness.

I have a friend who is active in the breast cancer survivor society here. They have come up with pins in the shape of their signature ribbon. Perhaps we too can have a pin like that.

Feedback. Please let us have your opinions.

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Burgundy sounds like a good colour James - how about

"Don't be a clot - keep informed"

I am pleased to announce that our Awareness Wristbands are now available. We have used Anne's suggestion of "Don't Be A Clot" as our slogan and used bright green as our colour choice. The colour is based on our web site identity and echoes the illuminated "+" signs seen outside chemists and drug stores.

The production costs for the wristband were quite reasonable. However, postage outside the UK costs more than the wristband itself! We are able to cut through all sorts of administrative red tape by giving them away, so if you'd like one we are asking for a forum sponsorship instead. The amount you choose is up to you... we are just about covering our costs with the 3 month package.

If you'd like to find out more see this web page...

http://www.protein.org.uk/wristbands.php

If you are logged in and would like to arrange a forum sponsorship use this link or click on the orange "donate" button in the top right hand corner...

http://www.protein.org.uk/forum/index.php?...&CODE=index

Thank you to everyone for their suggestions and your continued support.

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